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We all need to get involved.  There is power in numbers.  See how your voice can be heard.  Sign the petition below and click here for more information on how to make a difference

Fibromyalgia Awareness petition (US)
This petition comes from the The Fibromyalgia Advocate by Dr. Devin Starlanyl, M.D

bulletWhereas Fibromyalgia Syndrome is associated with disability of a magnitude comparable to that of other chronic pain conditions and is a common and costly cause of work disability, and the quality of life of a person with Fibromyalgia Syndrome is less than those who suffer from Rheumato´d Arthritis, and Myofascial Pain Syndrome has been specified as incapacitating torture,
bulletWhereas Fibromyalgia Syndrome is prevalent in the population, the etiology of Fibromyalgia Syndrome is yet unknown, and the perpetuating factors for myofascial trigger points have been ignored by the majority of the medical establishment,
bulletWhereas Juvenile Fibromyalgia & Myofascial Pain Syndrome present a unique challenge, cause our children to unduly suffer from their effects, and cause needless embarrassment at their schools due to the pathophysiology of these conditions being poorly understood,
bulletWhereas the majority of the medical and scientific community, the media, and our own government, even in the face of research, past and present findings, continue to trivialize Fibromyalgia Syndrome & Myofascial Pain Syndrome,
bulletWhereas people with the illnesses Fibromyalgia and Myofascial Pain Syndrome are inadequately treated for pain, which is the main focus of their fatigue and lack of quality sleep, or are treated with more invasive methods than are necessary,
bulletWhereas suicide is the leading cause of death from Fibromyalgia Syndrome and chronic Myofascial Pain Syndrome, and innumarable people with these nonterminal but devastating illnesses have chosen to end their interminable pain and suffering by taking their own lives,
bulletWe, the undersigned, do hereby demand that a significant increase in RESEARCH and EDUCATION grants for Fibromyalgia Syndrome research be awarded by all governments, and that special funds be allocated to address the Unique and challenging problems Fibromyalgia and Myofascial Pain Syndrome.
bulletWe do hereby demand that Fibromyalgia Syndrome and chronic Myofascial Pain Syndrome be listed as separate and distinct disabilities through the Social Security Administration, including Canada Pension Plan Disability Administration and that sufferers who try to attempt to continue to work be protected by any Health Insurance.
bulletWe do hereby demand that the government and the scientific community cease and desist from awarding research grants to individuals attempting to label Fibromyalgia a psychogenic illness, as previous research has clearly shown otherwise, instead spending the resources available on addressing the biochemical abnormalities that are presently known and established
bulletWe do hereby demand that a government committee be set up to deal with the problems of Fibromyalgia Syndrome and chronic Myofascial Pain Syndrome, that Fibromyalgia Syndrome and chronic Myofascial Pain Syndrome be taken seriously as the devastating illnesses that they are, and not trivialized as "aches and pain", by the government, the medical and scientific communities, the media as a whole, and society itself.
bulletWe do hereby demand that people with Fibromyalgia Syndrome and chronic Myofascial Pain Syndrome be treated properly for pain, to include narcotic pain medication when necessary, and that chronic/intractable pain patients, not be made to suffer when there is medication available that will alleviate such suffering, in place of being undertreated or treated with more invasive methods.
bulletWe do hereby demand that, to provide a better quality of life for millions of Fibromyalgia Syndrome and chronic Myofascial Pain Syndrome sufferers, the new and updated findings and research on Fibromyalgia Syndrome be taught in the medical schools, and that the study of Travell and Simons' Myofascial Pain and Dysfunction : The Trigger Point Manuals, Vol. I and Vol. II, be made mandatory for medical schools, that these illnesses be recognized as the devastating conditions that they are, and the wide range of symptoms associated with Fibromyalgia and chronic Myofascial Pain Syndrome, other than pain, also be recognized.

Contact the 105th Congress - this link will bring up another browser window with a direct link to congressional email, snail mail, phone contact and other information.

Guidelines for correspondence:

bulletGet to the point and keep it short, this will increase the chances of your correspondence being read in full.
bulletInclude your name and address. Legislators usually only have time to address correspondence that is within their district. Also, unsigned letters are usually ignored.



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